Amber Walker, PT, DPT, CFMP, CNPT
Hi! I’m Amber, and I’m from Anchorage, Alaska. I’m a proud auntie, outdoor enthusiast, healthcare provider and natural medicine guru, and freelance writer/photographer. In the past I’ve held roles as a collegiate athlete, swimming coach, faculty at various universities, researcher, story gatherer, small business owner, and public health leader. My happy place is on a mountain trail or a surfboard. I moved to Mexico in 2021 and it was one of the best decisions I’ve ever made!
Life has changed dramatically for me since I first started writing about MCAS. But here’s the back story: In 2016, my career as a physical therapist was put on hold as I hit rock bottom with dozens of silent and invisible symptoms. My health had been deteriorating gradually since I spent a year in Peru as a volunteer with Catholic Medical Missions Board in 2010-2011. But to be honest, certain aspects had not been well since my teenage years, and I had floated from specialist to specialist for nearly two decades. And looking back, I had signs of system-wide inflammation in my history since birth. Leading up to the spring of 2016 I was still searching for answers, working multiple jobs and training for trail ultra-marathons. I just kept “pushing through” symptoms until I could no longer function.
I had all the labels – chronic fatigue syndrome, fibromyalgia, anxiety/depression, psychosomatism. I had bounced around from misdiagnoses of M.S., rheumatoid arthritis and Crohn’s disease and had even undergone one unnecessary surgery for endometriosis/interstitial cystitis. I regularly experienced hives, fevers/flushing, insomnia, dysautonomia, upper cervical instability issues, dizziness, headaches, blurred vision and eye floaters, hair loss, Raynaud’s circulatory issues, severe gastrointestinal symptoms including gastroparesis and abdominal angioedema, intestinal cramping, nausea and vomiting, urinary urgency and frequency, burning in the mouth and throat, heartburn, blood pressure drops and near fainting, dermatographism, chest pain, sinusitis, difficulty breathing/”asthma”, recurrent pneumonia, ruptured eardrum, vocal cord issues, facial nerve issues, numbness and tingling and burning in the hands and feet, a “chemical-like” anxiety, severe mood swings, hypoglycemia, intracranial pressure issues with cerebrospinal fluid leaks, eye irritation, muscle and tendon inflammatory issues, joint pain, frequent fractures, spine pain and sciatic nerve issues, abnormal bruising, skin abnormalities, chemical sensitivities, cold intolerance, and severe anaphylaxis to insect stings and many foods.
In late 2016 I relocated from Alaska to Washington and continued to pursue health answers. Once in Washington, I began having more severe and frequent reactions to my environment and foods, and determined that black mold-infested buildings were partly to blame. I was having anaphylaxis from sitting on a bus, walking by a cigarette smoker or someone with perfume, eating the same thing I had yesterday, and driving through farm country. I moved several times in attempts to reduce mold exposure. I stumbled upon Dr. Afrin’s book, found a functional medicine doctor who was willing to test me for MCAS (even though she had never heard of it) and the rest was history!
While this MCAS deep dive gave me clues as a big part of my health puzzle, and getting certain symptoms calmed down made a big difference in my quality of life, I still continue to strive for a more holistic approach. I firmly believe that the environment of toxins – in air, water, food, heavy metals, hidden mold, etc. – is a big contributor to patients presenting with MCAS symptoms. I also believe that underlying issues such as parasites (that feed on toxins) can contribute to the bigger picture of immune dysregulation and mast cell activation.
As I continued to investigate, I collected a chronic illness “resume” of additional labels: Epstein-Barr virus, Lyme disease and co-infections, mycoplasma pneumonia, streptococcus pneumonia, toxoplasmosis, c. diff, SIBO, parasites and protozoal infections, heavy metal toxicity, celiac disease, mold toxicity, adrenal fatigue, POTS, post-traumatic stress, liver and detoxification problems, Ehlers-Danlos syndrome, median arcuate ligament compression, hereditary angioedema and thyroid issues were all part of the puzzle, it seemed. With such a high load and burden on the immune system, I was not able to make progress until I addressed some of these other factors. And a big aspect of my healing journey resides in my faith, surrender of control to God, and continual focus on deep-rooted joy vs. fleeting happiness.
As I’ve uncovered many truths about this thing we call MCAS, I’ve been compelled to share them with fellow patients and my peers in the physical therapy world. Looking back, I now realize that many of my prior patients were likely suffering along the spectrum of mast cell activation disease. I want patients to be empowered to get at the root issues contributing to their chronic musculoskeletal and neurological ailments. Physical therapists (PT’s) have a unique vantage point and the opportunity to get a thorough patient history over the course of multiple sessions, and my hope is that PT’s will gain more awareness about this condition and as “gatekeepers” can help point patients in the right direction to reduce inflammation and thrive.
A plethora of wonderful resources already exist for MCAS, so the aim of this site is more focused on special creative projects and education.
Origin Wellness
In 2020 I completed certifications in functional medicine and nutrition and opened up a holistic clinic for the chronic illness patient population called Origin Wellness. Since then, I’ve explored a wide array of additional incredible (mental, emotional, physical, spiritual) tools for to expand healing for myself and my patients. I now utilize tools like Mind Body Spirit Release™ (MBSR™), CranioBiotic Technique, the Safe & Sound Protocol, and other modalities with clients via telehealth. I also host virtual groups and in-person retreats and continue to publish books, teach courses and write for magazines. I’m grateful for the path that led me here, and I hope to inspire others in their journey to remember that healing and reversal of symptoms is possible!
Thanks for visiting and listening to my story!
If you want to read a more lengthy version of my whole story – updated through 2024, you can find it here:
Also, you can learn more by checking out my books:
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