A Blog of "All Things MCAS"
Twilah Hiari is from Overland Park, Kansas, and like many patients with MCAS, she has had symptoms her entire life (since infancy), but did not receive a diagnosis until she saw Dr. Afrin in July of 2017. Twilah describes symptoms that are “all over the...read more
Yeah, you read that right. It says “OH Histamine.” As in, a doting and gushing and favoring admirer. As in, “Ohhhh Histamine, you are absolutely mahhhvelous!” The mast cell activation syndrome (MCAS) patient community has been focused on the trend of a...read more
The goal of this post is to explore potential connections between Mast Cell Activation Syndrome (MCAS), a common (but highly underdiagnosed) condition, and Hereditary Angioedema (HAE), a rarer disease. In order to do that, let's start with a little...read more
February 28, 2018 is Rare Disease Day. I haven't found many blogs about HAE that discuss abdominal attacks, so I decided to take a stab at it and share my HAE story. I'll also share more information about HAE in Part II! My idea of the concept...read more
The truth is, the holidays are (sadly) a stressful time for many. And we all know that stress, crowds, new foods and odors can all lead to mast cell degranulation… which makes the patient with MCAS feel like one giant party pooper. As I was pondering some...read more
Have you ever noticed that vacations that involve “getting off the grid” can be extra relaxing or energy boosting? While I was writing a book this summer, I would periodically sneak off to my boyfriend’s family cabin in near Willow, Alaska. The beautiful...read more
It’s hard to believe that it’s December already! Needing some help with gift ideas for your loved one who has Mast Cell Activation Syndrome? Check out the ideas below, all of which can be easily purchased online. Disclaimer: nothing to state, this is a...read more
These days, it seems we are bombarded with information overload and technology. My general philosophy on phone apps is one of “less is more” … but I think that they can be useful tools in some instances. The trouble is, it often takes a lot of...read more
I’ve always loved Thanksgiving. A time to slow down before the typical whirlwind month of December. A holiday focused around quality time with loved ones. For sufferers of MCAS, the holidays often bring added or unique struggles as stress and dietary...read more
So, you’ve finally been clinically diagnosed with Mast Cell Activation Syndrome. Congratulations!!! For many, this only comes after decades of frustration with unexplained symptoms that don’t add up. Take the time to give yourself a giant pat on the back....read more
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